R.I.P. Michael Jackson
Thursday, June 25, 2009
Wednesday, June 24, 2009
Monday Funday
My heart cath will be on Wednesday. Think of me. I am more nervous about this than surgery because I will only be under conscious sedation. Meaning I will only get to go about half way to lala land. The doctor has reassured me that I will be comfortable. He said he will give me a good "margarita" and 2 if I really need it : )
June 24-When life gets to be too much, go get a massage.
June 23- So behind on P365
June 22- It got in the house, I tried to kill it, it wouldn't die so I let it go outside.
June 21- Happy Father's Day Dad!
June 20- Our street was egged by, I'm guessing, bored teenagers.
June 19- A lizard got into the house. When I was little I had excellent lizard catching skills but they have escaped me. I ended up using Keymo to help me get it. It was safely returned to the yard.***************************************
Forgot to take pics for two days so I'm using some pictures from my trip to Asia last summer.
June 18- Twin Towers in Kuala Lumpar, Malaysia.
June 17- At Batu Caves in Malaysia with my new friends. I had a great time but it was so hot and humid, I had a hard time getting up all the stairs to the top.
June 16- Love this place, it was hot in Dallas I had to go everyday.
June 15 -I was able to visit with my old onco. nurse at Presby Dallas where I was first treated.
Friday, June 19, 2009
I need some wine please
I'm back from Dallas. I had a cardiac cat scan yesterday and met with my surgeon today to discuss surgery.
Good news: The tumor only appears to be attached to the sac outside of my heart. It should be fairly "easy" to remove.
Not so good news: The cardiac cat scan showed a very interesting discovery of my anatomy. I have a congenital heart defect that has gone unnoticed for 26 years. Crazy. Simply put, I should have 2 coronary arteries attached to my aorta supplying oxygenated blood to my heart, but I only have one. The other coronary attery is attached to my pulmonary artery. The one that is supplying the oxygenated blood is doing a great job! It is a lot larger than it should be because it has been overcompensating. Of all the tests I have had in the last 6 years, only the one I had yesterday showed the defect. The surgeon said only certain tests show it. I also had no symptoms. I did sports in high school, and am still very active and other than a few palpitaions I had no reason to think something was wrong with my heart. The cardiac cat scan was to better see the tumor!!! Often the first symptom is something very scary that I'm not going to type, so I'm anxious to get this fixed.
So now, not only do I have to get the tumor removed but I need the heart defect corrected. I am going to see a specialist at Texas Children's-usually these problems are corrected during infancy/early childhood. They will try to coordinate so I can have it all done at one time. I will have a cardiac cath done next week and then possibly a little more chemo just to keep me safe until surgery. The surgeon who is removing the tumor is going out of town for 2 weeks (ugh, i know) so the surgery will not be for at least 3 more weeks. Blah.
Good news: The tumor only appears to be attached to the sac outside of my heart. It should be fairly "easy" to remove.
Not so good news: The cardiac cat scan showed a very interesting discovery of my anatomy. I have a congenital heart defect that has gone unnoticed for 26 years. Crazy. Simply put, I should have 2 coronary arteries attached to my aorta supplying oxygenated blood to my heart, but I only have one. The other coronary attery is attached to my pulmonary artery. The one that is supplying the oxygenated blood is doing a great job! It is a lot larger than it should be because it has been overcompensating. Of all the tests I have had in the last 6 years, only the one I had yesterday showed the defect. The surgeon said only certain tests show it. I also had no symptoms. I did sports in high school, and am still very active and other than a few palpitaions I had no reason to think something was wrong with my heart. The cardiac cat scan was to better see the tumor!!! Often the first symptom is something very scary that I'm not going to type, so I'm anxious to get this fixed.
So now, not only do I have to get the tumor removed but I need the heart defect corrected. I am going to see a specialist at Texas Children's-usually these problems are corrected during infancy/early childhood. They will try to coordinate so I can have it all done at one time. I will have a cardiac cath done next week and then possibly a little more chemo just to keep me safe until surgery. The surgeon who is removing the tumor is going out of town for 2 weeks (ugh, i know) so the surgery will not be for at least 3 more weeks. Blah.
Thursday, June 11, 2009
Oh happy day!
I received great news from the doctor yesterday, the tumor is small enough for surgery!!!! He said he could not be more pleased with my results. I will meet with the surgeon next week and I could have surgery as soon as the end of next week, but more than likely within the next 2-3 weeks. I am very happy to get this part over with. Not so good news-after surgery I will need 4-6 more rounds of chemo. I almost fell out of my chair when he said this. But then he said when we are done with those rounds we stop, that's it, I'm done and hopefully off into the land of remission. I hope to live there for the rest of my life...
June11-packing for Dallas. I need a break from my house and the two people who live there. I love them, but everybody needs a little break sometimes. This is just food and meds. I am an over packer.
June 10- my "couldn't be more pleased" test results. The big gray blob is the tumor, the first square is from November, the second is from February and the third is from 2 days ago.
June 9-Next day, new dressing room, waiting for CAT scan
June 8-in the dressing room waiting for my PET scan
June 7- my dirty dozen pesticide card I take to the grocery store with me so I know what I need to buy organic and what I can buy conventional
June 6-Me and Kev
June 5- I think this is my first bruise ever. It's from a combination of low platelets and me being clumsy.
June 4-playing in the mirror
June 3- Beamer (the white dog) came into my room at about 7am and wanted up on the bed so I helped her up. She then squats and empties her bladder on my bed!!!! I threw the dirty sheets on the floor and this one came along trying to sleep on them. Gross.
June 2- my delicious salad. I cut up all the veggies as soon as I get home from the store and put them in this container.
June 1- I ordered this great tray from QVC and it arrived today.
May 31- Out to eat with momWednesday, June 10, 2009
Wednesday, June 3, 2009
more catching up
This little project is really starting to annoy me, I really don't want to do it half the time BUT I love the idea that I will have a snapshot of a whole year and I love the way my album is turning out...this keeps me going.
May 30- I love the Internet. I was not able to go to Mexico for a wedding, but I was able to watch it live via the Internet.
May 29- At the gas station looking across the parking lot at Old Navy and Michael's contemplating whether I should go in or not. Counts are low so no was the answer.
May 28- My dad's new truck , I can't wait to drive it
May 27- Fried green tomato heaven
May 26- My mom put signs on the doors to remind to put the dogs in their cages before I leave...it's not that I always forget I just don't because they don't listen to me and I'm not going to fight with 3 little dogs
May 25- It's rare I park in the garage. There are just too many things to run into with my car.
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