It takes at lot longer to get a breast biopsy at Anderson than we first thought. I will have a mammogram and biopsy at the beginning of next week. I will then have to wait 7-10 days for the results. But at least within that week I have my first clinical trial brain MRI so I have more results to obsess about to take my mind of the other ones.
Today is the last day I will be taking the anti seizure medication Keppra. I have been having a skin reaction to it and since I have not had a seizure, doctor said that I could take a half dose for 3 days then stop. I am very happy about this because it made me quite sleepy.
Today is the last day in my twenties!!! It's been a crazy decade. Though I have been dealing with this illness since 2 months after turning 20, I have had many more good times these past 10 years than bad times. I do a lot when I am in remission and feeling well. I have had 7 major surgeries and 2 years of chemo. It sounds like a lot but it was over 10 years, leaving lots of time for fun. During my 20s I was able to:
-return to college and graduate with my Bachelors in Nursing. And when I was feeling well I had a great time in college, sometimes probably a little too much fun : )
-I was able to travel a lot, the farthest being Singapore
-I worked at a few jobs and finally in 2011 found my area of nursing, moved back to TX, and now have the best job EVER!
- I became a mama to the most handsome little chihuahua of all time named Toby.
-I met and married the love of my life!!
-I lived in Rhode Island for a little over a year and had the opportunity to experience another part of the country.
I learned so much in my 20s. Sometimes they were painful lessons, but I needed them to grow. I sometimes think what life would be like if I had never gotten cancer. I for sure wouldn't be who I am today and I wouldn't be where I am today. Having cancer calmed me down and bit and slowed me down, 2 things that I really needed ten years ago. Do I wish I could have gotten those lessons a different way, of course, but knowing me I probably wouldn't have learned what I needed to. If I could go back in time and was given a delete cancer button, I wouldn't press it. Are there some things I would change, of course! I would have gone to a different doctor initially, I would have a freezer full of my eggs locked down somewhere and I would most definitely delete a recurrence or two, maybe 3. But other than that, as painful as it sometimes was, I wouldn't trade it. Life just wouldn't be what it is now if I had taken a different path. Even though I'm going through it again, I am still so very grateful for all that I have in my life.
So tomorrow will be the start of a new chapter. I look forward to see what it holds.
Wednesday, January 30, 2013
Wednesday, January 23, 2013
Pet CT results
UGH......Pet ct is clear except for a very small nodule in my right breast.
Like so small I can't feel it and my doctor and his mid level provider had trouble feeling it.
But big enough to where we could see that the ugly little thing lit up on the pet ct, which is very concerning that it lit up.
SO...I am going to need a biopsy and most likely it will need to be removed.
Here is the part that makes me want to scream. I just assumed it was rhabdo, but because of it's location the doctor said it could be primary breast cancer. He said there is a 1/3 chance it's primary breast cancer, 1/3 of a chance rhabdo, 1/3 of a chance it's benign.
We really didn't discuss chemo today because we need to figure out what this is first.
Since they won't be able to biopsy until Monday or Tuesday, I'm going to fly home tomorrow. I miss my husband and I need a few days to pretend like none of this is happening.
Like so small I can't feel it and my doctor and his mid level provider had trouble feeling it.
But big enough to where we could see that the ugly little thing lit up on the pet ct, which is very concerning that it lit up.
SO...I am going to need a biopsy and most likely it will need to be removed.
Here is the part that makes me want to scream. I just assumed it was rhabdo, but because of it's location the doctor said it could be primary breast cancer. He said there is a 1/3 chance it's primary breast cancer, 1/3 of a chance rhabdo, 1/3 of a chance it's benign.
We really didn't discuss chemo today because we need to figure out what this is first.
Since they won't be able to biopsy until Monday or Tuesday, I'm going to fly home tomorrow. I miss my husband and I need a few days to pretend like none of this is happening.
Saturday, January 19, 2013
Back in Houston
I'm back at my parents. I flew in on Thursday, my first day completely off of steroids. I felt really off the whole day and still don't fell right but that is to be expected coming off 4 weeks of dexamethasone. Fortunately that weird fuzzy brain feeling is getting better each day. Still swollen....I am drinking a lot of dandelion tea (natural diuretic), plenty of fresh green juice, and restricting my salt intake. I'm doing all I can to help my body get this swelling and fat off.
Yesterday I had a full body pet ct. I had the most amazing nurse. She has been a nurse for 36 years and was so sweet. She started an IV at a common place that people try on me, they never get it. Even when I tell them this, I still let them try sometimes. She is the first one ever to get it. We didn't even talk about it. She saw it, went for it and it was done. I think that was the easiest IV start that I have had in 10 years. I am a hard stick, I usually need the IV team. I wasn't worried about the scan when I went I was worried how many times I was going to get poked, because sometimes it can get a little crazy. Very thankful I had her for my nurse.
I had labs drawn yesterday. Thought it was so weird that a type and cross was ordered. This is normally done right before you receive some type of blood product. Come to find out steroids drop your platelet count and mine have DROPPED. No transfusion needed now. I used to get a lot lower when I was on chemo before I needed a tranfusion and would be fine so I'm not worried. I just need to have more labs Wednesday and make sure they are the same or going up before I go back home.
I won't get PET results until Wednesday when I see my medical oncologist and we will also discuss chemo at that time.
Yesterday I had a full body pet ct. I had the most amazing nurse. She has been a nurse for 36 years and was so sweet. She started an IV at a common place that people try on me, they never get it. Even when I tell them this, I still let them try sometimes. She is the first one ever to get it. We didn't even talk about it. She saw it, went for it and it was done. I think that was the easiest IV start that I have had in 10 years. I am a hard stick, I usually need the IV team. I wasn't worried about the scan when I went I was worried how many times I was going to get poked, because sometimes it can get a little crazy. Very thankful I had her for my nurse.
I had labs drawn yesterday. Thought it was so weird that a type and cross was ordered. This is normally done right before you receive some type of blood product. Come to find out steroids drop your platelet count and mine have DROPPED. No transfusion needed now. I used to get a lot lower when I was on chemo before I needed a tranfusion and would be fine so I'm not worried. I just need to have more labs Wednesday and make sure they are the same or going up before I go back home.
I won't get PET results until Wednesday when I see my medical oncologist and we will also discuss chemo at that time.
Tuesday, January 15, 2013
Cancer History
I was speaking with my friend for a few minutes last week ( hi Melissa!!!) and I realized that she did not know most of my cancer "history" I guess you can call it. And why would she, we just me when I started my new job in May. Then I started to realize most of my friends don't know the whole story. Of course my college friends do, because they were there from the beginning. I had to go over my medical history for the clinical trial team the other day and even I was getting confused. Until a few years ago I had it down, but now it's been 10 years and I think it will just be better to have a compiled list. So for anyone who is interested on catching up, here it goes. I will elaborate more on this one than the one I will keep for myself.
This March will be 10 years since my initial cance diagnosis.
-In the fall of 2002 I was a college sophomore. I started playing flag football with my dorms team. During one game I was knocked down by a guy onto my butt. The fall did not cause the cancer. Over the next few days I noticed something that felt like a bruised area on my left buttock. For 5 months!!! I saw an idiot doctor who said it was a muscle contusion and was enjoying taking my money for physical therapy. I also saw another doctor in the winter who said it was just a muscle contusion. Fortunately in March 2003 my mom took me to a doctor who immediately did a biopsy.
-March 2003, 20 years old, still a sophmore. The same day I found out I was got an interview for nursing school was the same day I found out I had cancer. My parents were living in El Paso at the time because of my dad's job. I was in college in Arlington at UTA. My dad told me over the phone. I cried so loudly the the girl next door came over to see what was happening. I told her and she said that she would go with me to the doctor that I had been refereed to the next morning, My parents made it in the next evening.
-At diagnosis I had a grapefruit size tumor in my left buttock. It didn't seem that big to me, still seemed like a really big bruised area because most of the tumor was up in my lower pelvis. I found out it was cancer on Monday, Thursday learned that I had lung metastasis and Friday I had my first surgery ever, a thoracotomy to remove 2 lung lesions.
- One month after that I started chemo, this would last for a year with one break for surgery. I had to leave college and move home.
-June 2003, left buttock tumor is removed after a few months of chemo. Chemo worked well and most of the tumor was dead. This was my hardest surgery to date, I was in the hospital for weeks and had to relearn how to walk.
- Spring 2004, finished chemo, went back to college. Reapplied to nursing school and got in.
-at this point I'm being scanned, buttock and lungs every 3 months. Later in 2004, there is a new lung nodule on my left lung. I have thoracotomy #2
-2005 another lung nodule on my right side. I have thoracotomy #3. I am able to stay in school through all of these. My fastest turn around time was surgery on Friday, back in class by Tuesday. It was hard and I was sore, but worth it. I wanted to graduate!
2007- another lesion is seen on the right lung. Thoracotomy #4
2008- this was a scary one. I had a softball size tumor show up under my sternum with in 3 months. At the time of finding it is not operable because it's so close to my heart. I immediately start chemo. This chemo will last for one year with a break for surgery. The chemo is successful in shrinking the tumor making it operable.
-July 2009 While looking at the tumor during a ct it is hard for the radiologist to find my right coronary artery. It is discovered that I have had a heart defect since birth. Absolutely asympotomatic, I did sports all through high school. The tumor is removed and the heart defect are fixed in one 8 hour surgery at Texas Children's. I needed to be there because of the cardiologist.
Oct 2009- finished chemo and went back to working
Feb 2010- met the love of my life and married him exactly one year later in 2011 : )
Dec 2012- Thought I had a sinus infection.....
Dec 27- Right side brain tumor removal
This March will be 10 years since my initial cance diagnosis.
-In the fall of 2002 I was a college sophomore. I started playing flag football with my dorms team. During one game I was knocked down by a guy onto my butt. The fall did not cause the cancer. Over the next few days I noticed something that felt like a bruised area on my left buttock. For 5 months!!! I saw an idiot doctor who said it was a muscle contusion and was enjoying taking my money for physical therapy. I also saw another doctor in the winter who said it was just a muscle contusion. Fortunately in March 2003 my mom took me to a doctor who immediately did a biopsy.
-March 2003, 20 years old, still a sophmore. The same day I found out I was got an interview for nursing school was the same day I found out I had cancer. My parents were living in El Paso at the time because of my dad's job. I was in college in Arlington at UTA. My dad told me over the phone. I cried so loudly the the girl next door came over to see what was happening. I told her and she said that she would go with me to the doctor that I had been refereed to the next morning, My parents made it in the next evening.
-At diagnosis I had a grapefruit size tumor in my left buttock. It didn't seem that big to me, still seemed like a really big bruised area because most of the tumor was up in my lower pelvis. I found out it was cancer on Monday, Thursday learned that I had lung metastasis and Friday I had my first surgery ever, a thoracotomy to remove 2 lung lesions.
- One month after that I started chemo, this would last for a year with one break for surgery. I had to leave college and move home.
-June 2003, left buttock tumor is removed after a few months of chemo. Chemo worked well and most of the tumor was dead. This was my hardest surgery to date, I was in the hospital for weeks and had to relearn how to walk.
- Spring 2004, finished chemo, went back to college. Reapplied to nursing school and got in.
-at this point I'm being scanned, buttock and lungs every 3 months. Later in 2004, there is a new lung nodule on my left lung. I have thoracotomy #2
-2005 another lung nodule on my right side. I have thoracotomy #3. I am able to stay in school through all of these. My fastest turn around time was surgery on Friday, back in class by Tuesday. It was hard and I was sore, but worth it. I wanted to graduate!
2007- another lesion is seen on the right lung. Thoracotomy #4
2008- this was a scary one. I had a softball size tumor show up under my sternum with in 3 months. At the time of finding it is not operable because it's so close to my heart. I immediately start chemo. This chemo will last for one year with a break for surgery. The chemo is successful in shrinking the tumor making it operable.
-July 2009 While looking at the tumor during a ct it is hard for the radiologist to find my right coronary artery. It is discovered that I have had a heart defect since birth. Absolutely asympotomatic, I did sports all through high school. The tumor is removed and the heart defect are fixed in one 8 hour surgery at Texas Children's. I needed to be there because of the cardiologist.
Oct 2009- finished chemo and went back to working
Feb 2010- met the love of my life and married him exactly one year later in 2011 : )
Dec 2012- Thought I had a sinus infection.....
Dec 27- Right side brain tumor removal
Monday, January 14, 2013
Watch and wait
I have been accepted into the clinical trial and was chosen by the computer for watch and wait. So for now (hopefully never) no radiation. I will get my first MRI with the trial in a few weeks.
At first I didn't care which one was picked, I really liked that I did not have to decide. But as soon as I heard "observation" from the nurse I just melted into the couch. I hadn't been that relaxed in weeks. I started to have a much harder time with the steroids on Thursday than I thought might happen. And the idea that I may have to have radiation in a few days involving more steroids was making me a little nervous.
On Thursday I flew back to Dallas. I was a little nervous to be by myself that long, I guess because I have had someone with me for almost 4 weeks now. But I just tried to relax and read. Everything was fine on the flight. I was worried how my head would feel with the pressure. I had no pain. Definitely some weird pressure and gurgling still going up in there, but it was a very comfortable flight.
About mid day before I left I noticed my swelling start to increase. Even though I'm tapering off the cumulative effects of being on dexamethasone for 4 weeks just caught up with me and it's like overnight the swelling was everywhere and worse. Extended steroid use also causes your body to start transferring fat pockets to weird places, like you torso. I was pretty uncomfortable, the worst being my abdomen because I felt like I wasn't able to take a deep breath and that just makes me feel anxious. I have a pretty small frame so I just felt like I had so much weight on me. I have also started to have muscle atrophy. I knew this could happen with long term use but I guess with me it's at 4 weeks. My legs felt so heavy Thursday and everyday since it just gets harder and harder to use my legs. I can still walk and do everything I need to do but it's definitely a noticeable difference, especially trying to get up or kneel. The increase in the taper caused horrible joint pain. I had no idea that this was something that happened and woke up Friday morning around 3am feeling like I had been hit in the knees with hammers. It's worse at night, I'm not sure what it is about 3-4am that it wants to kick in. But I can usually get it to ease up by getting up and walking around. I was so scared when it happened, I was thinking all kind of crazy reasons why I would be having joint pain. Fortunately I found a great on line forum of patients using dexamethasone. It had a lot of helpful information and a lot of people have this joint pain when they are tapering so that made me feel better.
I've been really surprised that I have been feeling worse 2 weeks after surgery than right after, it's normally the opposite for me.
Other than all the craziness from the steroids I have REALLY enjoyed being at home with Melvinn. We had a really nice weekend.
I will go back to Houston later this week for my Pet ct and then the next week meet with my oncologist. We still need to discuss if chemo is an option. Hopefully we will be discussing this over negative pet ct results!
At first I didn't care which one was picked, I really liked that I did not have to decide. But as soon as I heard "observation" from the nurse I just melted into the couch. I hadn't been that relaxed in weeks. I started to have a much harder time with the steroids on Thursday than I thought might happen. And the idea that I may have to have radiation in a few days involving more steroids was making me a little nervous.
On Thursday I flew back to Dallas. I was a little nervous to be by myself that long, I guess because I have had someone with me for almost 4 weeks now. But I just tried to relax and read. Everything was fine on the flight. I was worried how my head would feel with the pressure. I had no pain. Definitely some weird pressure and gurgling still going up in there, but it was a very comfortable flight.
About mid day before I left I noticed my swelling start to increase. Even though I'm tapering off the cumulative effects of being on dexamethasone for 4 weeks just caught up with me and it's like overnight the swelling was everywhere and worse. Extended steroid use also causes your body to start transferring fat pockets to weird places, like you torso. I was pretty uncomfortable, the worst being my abdomen because I felt like I wasn't able to take a deep breath and that just makes me feel anxious. I have a pretty small frame so I just felt like I had so much weight on me. I have also started to have muscle atrophy. I knew this could happen with long term use but I guess with me it's at 4 weeks. My legs felt so heavy Thursday and everyday since it just gets harder and harder to use my legs. I can still walk and do everything I need to do but it's definitely a noticeable difference, especially trying to get up or kneel. The increase in the taper caused horrible joint pain. I had no idea that this was something that happened and woke up Friday morning around 3am feeling like I had been hit in the knees with hammers. It's worse at night, I'm not sure what it is about 3-4am that it wants to kick in. But I can usually get it to ease up by getting up and walking around. I was so scared when it happened, I was thinking all kind of crazy reasons why I would be having joint pain. Fortunately I found a great on line forum of patients using dexamethasone. It had a lot of helpful information and a lot of people have this joint pain when they are tapering so that made me feel better.
I've been really surprised that I have been feeling worse 2 weeks after surgery than right after, it's normally the opposite for me.
Other than all the craziness from the steroids I have REALLY enjoyed being at home with Melvinn. We had a really nice weekend.
I will go back to Houston later this week for my Pet ct and then the next week meet with my oncologist. We still need to discuss if chemo is an option. Hopefully we will be discussing this over negative pet ct results!
Wednesday, January 9, 2013
Jan 9th Dr. Appointment update
Hello!! Thank you to everyone who has called or text today. I'm so sorry that I was not able to explain everything to text for everyone but it is just really too much information to text and for my mental health, it really is best for me to just say it once. That's why I love this blog!
The staples are out. It was easy, painless and I feel so much better, The scar is so nice and thin, it's not going to be noticeable once my hair comes back, which it has already started to grow in. I knew I could wash my hair tomorrow, but was very disappointed to learn that I can only use baby shampoo for two weeks. This will be interesting, but at least my hair will be clean. I seriously feel like Willow Smith with my asymmetric haircut. I'm so happy it's not as bad as I thought it would be! I have most of my hair.
The pathology report shows that it was rhabdomyosarcoma, meaning same thing I had before. So I guess good news.... it's not a weird new cancer!
Treatment options: Since rhabdo normally doesnt go to the brain, there is not a clear cut treatment protocol. Whole brain radiation is an option. The thinking behind that is if there is one tumor there may be other cancer cells in the brain lurking, nuke them all. But with that you are also risking life long cognitive issues. For now this is not an option. Especially at MD Anderson. Outside of MDA it's standard, but the highly skilled surgeons at MDA have better succcess rates than outside so luckily for me this option has been taken off the table.
The other options are watch/wait or gamma knife radiation to empty cavity. Because the tumor was in the brain, there is no way to get really nice big clean margins because then you are taking brain tissue. So there is always a risk of there being a few cells left behind. Do you wait and see if another tumor starts to grow, or radiate the tiny area, possibly causing problems when not needed. There is no clear answer. But fortunately MDA has a clinical trial focusing on that right now that I am almost accepted into pending one or two more things. I met the team today and I love them! I have always heard such great things about clinical trials from other patients. You are followed so closely. Best part about it for me is I don't have to make the decision. A computer will decide if I get radiation or watch and wait. Either way I will be very closely monitored. If I do radiation, it will be next week, one day treatment. If I do watch and wait I will have MRI in one month. And if I am on the watch and wait, this does not remove me from treatment. If ever they suspect something may be growing, I get the gamma radiation. I'm sure that would drive some people crazy not getting to choose, but it's good for me.
I did not get to see my medical oncologist today. I have a PET ct next Friday, just to be sure nothing else is going on. I will then meet with him the next week to see what he thinks about chemo. We have been basically told that chemo is really not best for this because many don't cross the blood brain barrier. But he did have some ideas last time, so I'm very interested to see what he has to say.
As soon as my neuro surgeon saw me he said something about my "chipmunk cheeks" and then said I could speed up the taper on my steroids. So I will be off 3 days earlier and he said all this puffiness should go away with in a week or two after stopping. I still have to take seizure meds for 3 more months. I have been cleared for most activity, but still need to remember I just had surgery 2 weeks ago. And I have been cleared for yoga!!! Of course I got the listen to my body talk and I will. If all I can do is a few postures and then lay in the hot room for 60 minutes on my towel, then that's all I will do, happily and without shame! I'm just happy I'm cleared to go.
Because January is filled with so many what ifs and scans I will not be attempting to come back to work this month. I need to get all of this cleared up first.
I have been cleared to fly and will be coming home tomorrow. It may only be for a few days but I'm so happy! I really need a few days to just act like this isn't happening, clean my house (yes, yes, light cleaning, i know), watch all my dvr shows (Dexter and Homeland finales!!!!)))) and spend time with my best friend, I've really missed him.
Apologies now if I'm not my usual social self when I'm at home. I am so embarrassed by how I look. Seriously, I look like I have Cushings!!! And I need to rest. Also, steroids greatly depress your immunity so if you want to see me and I quiz you, which i will, about your health history over the last 2 weeks don't be offended. The last thing I need is a cold right now.
I really hope I can stay at least through Tuesday. I have been trying to see a new gyn and I have had an appointment waiting for almost 3 months!! 3 months!!! I would hate to have to re schedule, but if I'm picked for radiation it may have to be that day.
Again, thank you to everyone who checked on me today. I am feeling a little overwhelmed from today but I think a visit home will be just what I need to feel better.
The staples are out. It was easy, painless and I feel so much better, The scar is so nice and thin, it's not going to be noticeable once my hair comes back, which it has already started to grow in. I knew I could wash my hair tomorrow, but was very disappointed to learn that I can only use baby shampoo for two weeks. This will be interesting, but at least my hair will be clean. I seriously feel like Willow Smith with my asymmetric haircut. I'm so happy it's not as bad as I thought it would be! I have most of my hair.
The pathology report shows that it was rhabdomyosarcoma, meaning same thing I had before. So I guess good news.... it's not a weird new cancer!
Treatment options: Since rhabdo normally doesnt go to the brain, there is not a clear cut treatment protocol. Whole brain radiation is an option. The thinking behind that is if there is one tumor there may be other cancer cells in the brain lurking, nuke them all. But with that you are also risking life long cognitive issues. For now this is not an option. Especially at MD Anderson. Outside of MDA it's standard, but the highly skilled surgeons at MDA have better succcess rates than outside so luckily for me this option has been taken off the table.
The other options are watch/wait or gamma knife radiation to empty cavity. Because the tumor was in the brain, there is no way to get really nice big clean margins because then you are taking brain tissue. So there is always a risk of there being a few cells left behind. Do you wait and see if another tumor starts to grow, or radiate the tiny area, possibly causing problems when not needed. There is no clear answer. But fortunately MDA has a clinical trial focusing on that right now that I am almost accepted into pending one or two more things. I met the team today and I love them! I have always heard such great things about clinical trials from other patients. You are followed so closely. Best part about it for me is I don't have to make the decision. A computer will decide if I get radiation or watch and wait. Either way I will be very closely monitored. If I do radiation, it will be next week, one day treatment. If I do watch and wait I will have MRI in one month. And if I am on the watch and wait, this does not remove me from treatment. If ever they suspect something may be growing, I get the gamma radiation. I'm sure that would drive some people crazy not getting to choose, but it's good for me.
I did not get to see my medical oncologist today. I have a PET ct next Friday, just to be sure nothing else is going on. I will then meet with him the next week to see what he thinks about chemo. We have been basically told that chemo is really not best for this because many don't cross the blood brain barrier. But he did have some ideas last time, so I'm very interested to see what he has to say.
As soon as my neuro surgeon saw me he said something about my "chipmunk cheeks" and then said I could speed up the taper on my steroids. So I will be off 3 days earlier and he said all this puffiness should go away with in a week or two after stopping. I still have to take seizure meds for 3 more months. I have been cleared for most activity, but still need to remember I just had surgery 2 weeks ago. And I have been cleared for yoga!!! Of course I got the listen to my body talk and I will. If all I can do is a few postures and then lay in the hot room for 60 minutes on my towel, then that's all I will do, happily and without shame! I'm just happy I'm cleared to go.
Because January is filled with so many what ifs and scans I will not be attempting to come back to work this month. I need to get all of this cleared up first.
I have been cleared to fly and will be coming home tomorrow. It may only be for a few days but I'm so happy! I really need a few days to just act like this isn't happening, clean my house (yes, yes, light cleaning, i know), watch all my dvr shows (Dexter and Homeland finales!!!!)))) and spend time with my best friend, I've really missed him.
Apologies now if I'm not my usual social self when I'm at home. I am so embarrassed by how I look. Seriously, I look like I have Cushings!!! And I need to rest. Also, steroids greatly depress your immunity so if you want to see me and I quiz you, which i will, about your health history over the last 2 weeks don't be offended. The last thing I need is a cold right now.
I really hope I can stay at least through Tuesday. I have been trying to see a new gyn and I have had an appointment waiting for almost 3 months!! 3 months!!! I would hate to have to re schedule, but if I'm picked for radiation it may have to be that day.
Again, thank you to everyone who checked on me today. I am feeling a little overwhelmed from today but I think a visit home will be just what I need to feel better.
Monday, January 7, 2013
Just waiting....
Patience has never been a virtue of mine and the waiting this past week coupled with all these meds has been hard. Honestly I'm just really bored too. I'm used to moving around a lot and being busy. Fortunately I have been able to get out a little, went to Barnes and Noble to get some books, ordered some from Amazon that got here really fast. I have always loved learning about nutrition but have definitely become a little obsessed these last few days, finding new blogs and books on certain diets....paleo/primal vs. vegan. It's just all so interesting how everyone thinks they are right! I've just decided to read, enjoy and take what information I need for myself and family to make smart eating choices.
Saturday was hard. For some reason I thought it would be a good idea to take my AM steroid dose with a big glass of fresh veggie juice instead of my normal protein/carb including meal. BIG MISTAKE. I don't believe that I received any of that dose and seemed to be having withdrawal symptoms all day. It was terrible! Lesson learned. I'm being much more careful at how I take my medicine.
Other than that things have been ok. Not much pain, sleeping better and continuing to taper off meds. I even did a little light exercise this morning. Went up and down the stairs about 10 times. It felt really good. May go out for a walk later today.
Saturday was hard. For some reason I thought it would be a good idea to take my AM steroid dose with a big glass of fresh veggie juice instead of my normal protein/carb including meal. BIG MISTAKE. I don't believe that I received any of that dose and seemed to be having withdrawal symptoms all day. It was terrible! Lesson learned. I'm being much more careful at how I take my medicine.
Other than that things have been ok. Not much pain, sleeping better and continuing to taper off meds. I even did a little light exercise this morning. Went up and down the stairs about 10 times. It felt really good. May go out for a walk later today.
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